Relating to the Rita Littlefield Chronic Kidney Disease Centralized Resource Center established within the Health and Human Services Commission.

The text as introduced · 612 words

90R77 MPF-D

By: Guillen
H.B. No. 417

A BILL TO BE ENTITLED

AN ACT

relating to the Rita Littlefield Chronic Kidney Disease Centralized

Resource Center established within the Health and Human Services

Commission.

BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:

SECTION 1. Subtitle D, Title 2, Health and Safety Code, is

amended by adding Chapter 83A to read as follows:

CHAPTER 83A. RITA LITTLEFIELD CHRONIC KIDNEY DISEASE CENTRALIZED

RESOURCE CENTER

Sec. 83A.001. DEFINITION. In this chapter, "resource

center" means the Rita Littlefield Chronic Kidney Disease

Centralized Resource Center established under this chapter.

Sec. 83A.002. ESTABLISHMENT OF RESOURCE CENTER. The Rita

Littlefield Chronic Kidney Disease Centralized Resource Center is

established within the commission to serve as a centralized system

through which persons may:

(1) access information on chronic kidney disease and

related illnesses, including each clinical stage of kidney disease

and end stage renal disease; and

(2) register to receive information on clinical trials

and clinical trial opportunities for chronic kidney disease and

related illnesses.

Sec. 83A.003. ADMINISTRATION OF RESOURCE CENTER. (a) The

commission shall administer the resource center in accordance with

this chapter.

(b) The commission shall:

(1) structure and operate the resource center in a

manner that provides a comprehensive approach for readily accessing

information on and resources for chronic kidney disease and related

illnesses, including for each clinical stage of kidney disease and

end stage renal disease; and

(2) establish a kidney health clinical trials registry

to be maintained by the resource center through which patients and

their family members may register to receive educational

information on clinical trials and clinical trial opportunities

based on the clinical stage of a patient's chronic kidney disease or

end stage renal disease.

(c) The comprehensive approach described by Subsection (b)

must allow individuals to directly access or register to receive

aggregated information on:

(1) chronic kidney disease awareness, prevention, and

professional education opportunities, including:

(A) awareness campaigns for chronic kidney

disease and related illnesses;

(B) free screenings for chronic kidney disease

and related illnesses;

(C) professional resources and continuing

education opportunities for health care providers who treat

patients with chronic kidney disease or related illnesses;

(D) for individuals who register for inclusion in

the kidney health clinical trials registry established under

Subsection (b)(2), clinical trials and clinical trial

opportunities for chronic kidney disease and related illnesses; and

(E) chronic kidney disease partners, including

chronic kidney disease patient advocates, dialysis professionals,

health care providers, researchers, manufacturers, and other

appropriate persons;

(2) patient and family resources, including:

(A) general and specific chronic kidney disease

educational information;

(B) information on chronic kidney disease

prevention and early detection of chronic kidney disease and

related illnesses;

(C) nutritional and metabolism information for

individuals with chronic kidney disease and related illnesses; and

(D) directories of physicians who specialize in

kidney health; and

(3) resources on chronic kidney disease treatment

options and modalities, including:

(A) kidney donations and kidney transplantation

initiatives;

(B) deceased and living organ donation programs

and initiatives;

(C) organ recipient registries;

(D) treatment options for chronic kidney disease

and end stage renal disease; and

(E) financial assistance for obtaining treatment

for chronic kidney disease or related illnesses.

(d) The commission shall ensure the information the

resource center provides is available in both English and Spanish.

Sec. 83A.004. INTERNET WEBSITE. In collaboration with the

Chronic Kidney Disease Task Force established under Chapter 83, the

commission shall publish and maintain on the commission's Internet

website the information and resources the resource center provides.

Sec. 83A.005. GIFTS, GRANTS, AND DONATIONS. The commission

may solicit and accept gifts, grants, and donations from any source

to implement this chapter.

SECTION 2. This Act takes effect September 1, 2027.