Miles Kidney Disease Bill Declares A Center, Then Makes It Optional

The text as introduced · 676 words

By: Miles
S.B. No. 2089

A BILL TO BE ENTITLED

AN ACT

relating to the Rita Littlefield Chronic Kidney Disease Centralized

Resource Center established within the Health and Human Services

Commission.

BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:

SECTION 1. Subtitle D, Title 2, Health and Safety Code, is

amended by adding Chapter 83A to read as follows:

CHAPTER 83A. RITA LITTLEFIELD CHRONIC KIDNEY DISEASE CENTRALIZED

RESOURCE CENTER

Sec. 83A.001. DEFINITION. In this chapter, "resource

center" means the Rita Littlefield Chronic Kidney Disease

Centralized Resource Center established under this chapter.

Sec. 83A.002. ESTABLISHMENT OF RESOURCE CENTER. The Rita

Littlefield Chronic Kidney Disease Centralized Resource Center is

established within the commission to serve as a centralized system

through which persons may:

(1) obtain information on:

(A) chronic kidney disease and related

illnesses, including each clinical stage of kidney disease and end

stage renal disease; and

(2) receive information on clinical trials and

clinical trial opportunities for chronic kidney disease and related

illnesses.

Sec. 83A.003. ADMINISTRATION OF RESOURCE CENTER. (a) The

commission shall administer the resource center in accordance with

this chapter.

(b) The commission shall:

(1) structure and operate the resource center in a

manner that provides a comprehensive approach for readily accessing

information on and resources for chronic kidney disease and related

illnesses, including for each clinical stage of kidney disease and

end stage renal disease; and

(2) establish, and the resource center shall maintain,

a kidney health clinical trials registry through which patients and

family members of those patients may register to receive

educational information on clinical trials and clinical trial

opportunities based on the clinical stage of a patient's chronic

kidney disease or end stage renal disease.

(c) The comprehensive approach described by Subsection

(b)(1) must allow individuals to obtain or to directly access

aggregated information on:

(1) chronic kidney disease awareness, prevention, and

professional education opportunities, including:

(A) awareness campaigns for chronic kidney

disease and related illnesses;

(B) information on accessing free screenings for

chronic kidney disease and related illnesses;

(C) professional resources and continuing

education opportunities for health care providers who treat

patients with chronic kidney disease or related illnesses;

(D) for individuals who register for inclusion in

the kidney health clinical trials registry established under

Subsection (b)(2), information on clinical trials and clinical

trial opportunities for chronic kidney disease and related

illnesses; and

(E) information on chronic kidney disease

partners, including chronic kidney disease patient advocates,

dialysis professionals, health care providers, researchers,

manufacturers, and other appropriate persons;

(2) patient and family resources, including:

(A) educational resources containing general and

specific chronic kidney disease information;

(B) resources containing information on chronic

kidney disease prevention and early detection of chronic kidney

disease and related illnesses;

(C) nutritional and metabolism information for

individuals with chronic kidney disease and related illnesses; and

(D) directories for physicians who specialize in

kidney health;

(3) resources on chronic kidney disease treatment

options and modalities, including:

(A) kidney donations and kidney transplantation

initiatives;

(B) deceased and living organ donation programs

and initiatives;

(C) organ recipient registries;

(D) treatment options for chronic kidney disease

and end stage renal disease;

(E) financial assistance for obtaining treatment

for chronic kidney disease or related illnesses.

(d) The commission shall ensure information provided by the

resource center is available in both English and Spanish.

Sec. 83A.004. INTERNET WEBSITE. In collaboration with the

Chronic Kidney Disease Task Force established under Chapter 83, the

commission shall add and maintain information and resources of the

resource center on the commission's Internet website.

Sec. 83A.005. GIFTS, GRANTS, AND DONATIONS. The commission

may solicit and accept gifts, grants, and donations from any source

to implement this chapter.

SECTION 2. The Health and Human Services Commission is

required to implement a provision of this Act only if the

legislature appropriates money specifically for that purpose. If

the legislature does not appropriate money specifically for that

purpose, the commission may, but is not required to, implement a

provision of this Act using other appropriations available for that

purpose.

SECTION 3. This Act takes effect September 1, 2025.